I went onto my FB page today catching up with various postings. I’d had a night out with a dear friend in Camden Town and he had posted pictures up. The first posting I saw on my home page was from Doug. Poor 'Doug' had gone through the rounds with his treatment. He was facing a setback on treatment due to his mastectomy wound getting infected. On his last post on FB telling others to check his latest blog posting out. I noted a individual had said they found his blog too personal and Intrusive. Instantly I thought what the hell is this individual on. Then I had to think back how someone had tried to say the same thing to me about my blog.
I understand others would sooner keep their journey private with breast cancer, but then 'Life In Transition' another blog posting came up later on about the issues with Tamoxifen that are never discussed until things go wrong. This person is now facing the possibility of endometrial cancer.
Blogs are an important tool within cancer land because they are informative. I personally like this individual did not know Tamoxifen can cause another serious cancer. Just like I have never met a man with breast cancer. By these individuals opening up the door of their very personal journeys with cancer they are filling in gaps. And those very gaps educate all of us on treatment and the processes involved. It gives people the tools to question our treatment and move forward. Every time I walk into my Gyno office I sling questions at them. Just like when I meet my breast cancer nurse I will ask her about Tamoxifen and get her opinion. To say a blog is intrusive and too personal to me is wrong. How else are we to build up the confidence in the system that treats us unless we educate ourselves to say the word WHY? Why do I need this treatment? Why is there not alternatives?
I have personally been in the system too long to know do not except all straight away. The shock of receiving the diagnosis of cancer sends a person into over drive and panic. You believe that what you are told is your only alternative. Well I have learnt NO! Sometimes it is better to step back and say why? Then collect a heap of info from the net such as these blogs and slam it at your physician.
As my husband said Sarah is on the ball she won’t let a trick slip because it is her body, her life.
To sum it up if I don't step up and show an interest in my treatment, who will?
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